HG Study-PLEASE contact now, participate later

Moms with HG in their 1st trimester.

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HG Study-PLEASE contact now, participate later

Postby mfejzo » Jul 13, 2007 7:16 pm

I am deeply moved by those of you who have contacted me from your hospital bed to participate in our study. Having suffered from HG twice, I know it is nearly impossible to motivate when getting through each day is such a struggle. I wanted to let those of you who are currently suffering know that you or a loved one can contact me at nvpstudy@usc.edu and just put in the subject line or text "HG NOW" and that way I can put your email address in our database and contact you in the future when you are feeling better to officially enroll you in the study. We need 1,000 participants who have had HG treated with iv or tpn or feeding tube to discover the biological cause and hopefully cure for HG and we currently have 316 participants. Each one of you is needed to help bring us that much closer to the cause and cure!
Sincerely,
Marlena nvpstudy@usc.edu
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Postby IslandDreamer » Jul 31, 2007 9:13 pm

bump
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Postby Roz » Aug 28, 2007 8:30 am

Hi, where about are you and where is the study taking place ?
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Postby aaronsmommy » Aug 28, 2007 8:43 am

The study is being done at USC which is in Los Angeles. It is open to non-US residents, but unfortunately there isn't funding for that. Here is the information about doing the study if you aren't from the US.

http://forums.helpher.org/viewtopic.php?t=24411
Aimee

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Everyone counts!

Postby mfejzo » Nov 13, 2007 11:23 pm

Hi all. We hit the 400 mark---but we need 1,000 of you out there!!!) We really need everyone who has had HG to participate to find the biological cause of HG. If you are too sick to participate now, please have a caretaker email me (nvpstudy@usc.edu) with your contact email and put HG NOW in the subject line so I can get you in the system and contact you when you are feeling better. Please spread the word about the study by passing my email address out to your nurses and obstetricians and any friends with HG. You do not need to currently be pregnant to participate, you just need to have suffered from HG treated with iv hydration at least once. There is no cost or travel to participants living in the US. The survey can be filled out online and we will send you a kit in the mail to collect your saliva. This study is the first step to finding the cure for HG. Please help make a difference so the next generation doesn't have to suffer like we did.
Sincerely,
Marlena Schoenberg Fejzo, Ph.D, nvpstudy@usc.edu
HG Researcher and 2X HG sufferer
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