The HER Foundation has partnered with MoMMA’s Voices

The HER Foundation is pleased to announce it has joined MoMMA’s Voices, a national coalition of patient organizations and individuals with lived experiences or those who represent them, using their voices to reduce maternal complications in pregnancy and the postpartum period.

With the wave of media and public attention on the growing and unacceptable rates of maternal mortality and severe morbidity in the United States, this coalition answers the need for a strong consumer voice to advocate, amplify, and illustrate these issues in the US. MoMMA is short for Maternal Mortality and Morbidity Advocates, which captures the coalition’s mission.

For survivors and family members of the HER Foundation, we encourage you to share your story, join the training, and use your voice to be a champion for change. If you have already shared your story with HER or with another source, you can simply copy your link into the story section after completing the demographic section of the submission. Speak up, even if your voice is shaking.

HER joins the coalition that includes other organizational members Amniotic Fluid Embolism (AFE) Foundation, Black Women’s Health Imperative, Every Mother Counts, National Accreta Foundation, Preeclampsia Foundation, 2020Mom, The Shades of Blue Project, Sepsis Alliance and others still to be confirmed.

The coalition’s overarching goal is to provide a home and platform for the patient voice to actively engage in efforts to make childbirth safer in our nation. Issues like patient-provider communications, racial disparities, quality of healthcare delivery, and patient information cut across all medical conditions and heavily contribute to preventable maternal deaths and illness. Most importantly, it will provide training and tools to equip advocates to become effective champions for change.

MoMMA’s Voices offers opportunities to drive real change in maternal health. We’re excited about this step for maternal health and HG progress!

HG Awareness Day: How it Began

The International HG Awareness Movement began in 2012 when the HER Foundation held the first HG Awareness Day on May 15th.

On May 17, 2012, the Governor of North Dakota, Dennis Daugaard, issued an Official Executive Proclamation for the HER Foundation naming May 15th to be HG Awareness Day! “We want to thank Governor Daugaard for being the first Governor to recognize HG Awareness Day, and we are encouraged by his recognition of the need for awareness for HG women in his state. We hope it will inspire state lawmakers to follow in his footsteps for future Awareness Days. This is a huge step in raising awareness, education, and research. We are truly grateful,” said Ann Marie King, Co-Founder of the HER Foundation.

Since the first HGAD with the theme of “Pregnant and Starving for Answers,” the international movement has grown to include organizations and people from around the world. The HER Foundation is proud to be the global leader in awareness, research, education, advocacy, and support for the HG community.

HER has achieved many firsts including over two dozen ground-breaking research studies including those identifying the first genes associated with HG, developing HG assessment tools and protocols, and creating the first HG Care app to improve tracking and reporting of symptoms and treatment. HER continues to be the voice of hope and help for HG.

Support the work of HER to ensure continued progress for the next generation!

The HG CARE APP is available!!!

After three years of hard work by HER Foundation and UCLA Health, we celebrate the official public release of the first HG Care iOS app! Now women can track their symptoms and treatments to find out what’s working. Plus they can easily share insights into their progress with family and health professionals. The app is free. Remember if it makes you ill to use your phone, just have family input your data.

DOWNLOAD the app: https://itunes.apple.com/us/app/hg-care/id1148105670?mt=8

Continue reading

15 Years of Progress!

We’re starting the next chapter at HER as we kick off our 15th Anniversary!! From scientists to business experts, health professionals and digital health specialists, HER has assembled a team vast expertise! We launched our formal Board of Directors with an awesome meeting that discussed many ways to support families during/after HG, improve treatment by educating health professionals and launching the next version of the app, changing treatment protocols and public policy, and reaching more of the international community. Watch for many new opportunities to be part the next decade of HG progress!

Exciting News: Press Release

HER Foundation helps UCLA, USC and 23&Me link debilitating pregnancy illness to two genes

           FINALLY A BREAKTHROUGH FOR women suffering from the severe pregnancy illness, hyperemesis gravidarum (HG). Many people remember Princess Kate Middleton being hospitalized during her first pregnancy due to the severity of the disorder. However, other women affected by the pregnancy illness have limited family size, quit their jobs or sadly felt so desperate due to the debilitating illness that they terminated wanted pregnancies. Many HG women describe the illness as something no one can truly understand unless they have endured it themselves. Instead of the joy every pregnancy should bring, HG women spend most of the 9 months suffering in silence unable to eat or simply keep water down.

The HER Foundation, researchers at UCLA and USC, and 23andMe, Inc. conducted the first genome-wide analysis of Hyperemesis Gravidarum (HG) and identified two genes associated with HG, which was published this week in Nature Communications. (https://www.nature.com/articles/s41467-018-03258-0). Continue reading

UCLA study finds no evidence linking anti-nausea drug to birth defects

A study published by UCLA and supported, in part, by the Hyperemesis Education and Research Foundation found no evidence linking Zofran to birth defects.

“What was really significant to me was that women with extreme morning sickness who took Zofran reported fewer miscarriages and terminations and experienced higher live birth rates,” Fejzo said. “Taking this medication helped them get through their pregnancies and gave them their desired outcome, a live birth.”
Marlena Fejzo, PhD

Source: UCLA Health
Read the full study or HER Foundation collaborative research. Continue reading