The HER Foundation is pleased to announce it has joined MoMMA’s Voices, a national coalition of patient organizations and individuals with lived experiences or those who represent them, using their voices to reduce maternal complications in pregnancy and the postpartum period.
With the wave of media and public attention on the growing and unacceptable rates of maternal mortality and severe morbidity in the United States, this coalition answers the need for a strong consumer voice to advocate, amplify, and illustrate these issues in the US. MoMMA is short for Maternal Mortality and Morbidity Advocates, which captures the coalition’s mission.
For survivors and family members of the HER Foundation, we encourage you to visit www.mommasvoices.org/individual to share your story, join the training, and use your voice to be a champion for change. If you have already shared your story on our site or with another source, you can simply copy your link into the story section after completing the demographic section of the submission.
HER joins the coalition that includes other organizational members Amniotic Fluid Embolism (AFE) Foundation, Black Women’s Health Imperative, Every Mother Counts, National Accreta Foundation, Preeclampsia Foundation, 2020Mom, The Shades of Blue Project, Sepsis Alliance and others still to be confirmed.
The coalition’s overarching goal is to provide a home and platform for the patient voice to actively engage in efforts to make childbirth safer in our nation. Issues like patient-provider communications, racial disparities, quality of healthcare delivery, and patient information cut across all medical conditions and heavily contribute to preventable maternal deaths and illness. Most importantly, it will provide training and tools to equip advocates to become effective champions for change.
The International HG Awareness Movement began in 2012 when the HER Foundation held the first HG Awareness Day on May 15th.
On May 17, 2012, the Governor of North Dakota, Dennis Daugaard, issued an Official Executive Proclamation for the HER Foundation naming May 15th to be HG Awareness Day! “We want to thank Governor Daugaard for being the first Governor to recognize HG Awareness Day, and we are encouraged by his recognition of the need for awareness for HG women in his state. We hope it will inspire state lawmakers to follow in his footsteps for future Awareness Days. This is a huge step in raising awareness, education, and research. We are truly grateful,” said Ann Marie King, Co-Founder of the HER Foundation.
Since the first HGAD with the theme of “Pregnant and Starving for Answers,” the international movement has grown to include organizations and people from around the world. The HER Foundation is proud to be the global leader in awareness, research, education, advocacy, and support for the HG community.
HER has achieved many firsts including over two dozen ground-breaking research studies including those identifying the first genes associated with HG, developing HG assessment tools and protocols, and creating the first HG Care app to improve tracking and reporting of symptoms and treatment. HER continues to be the voice of hope and help for HG.
Support the work of HER to ensure continued progress for the next generation!
As a service to moms with a current or prior diagnosis of HG, the HER Foundation will host free, monthly online support groups via GoToMeeting on the third Thursday of the month from 12:00 – 1:00 PM/CST. Currently, there is a limit of 150 participants. Follow the Facebook event for updates and reminders.
The purpose of this online support group is to help moms to connect with other survivors of this devastating pregnancy condition. Regardless of how long it’s been since your traumatic pregnancy with HG, we hope that by connecting we can continue to heal. These online groups will be facilitated by HER Foundation Board Members and HG survivors, Sarah Coffman and Elizabeth Lowder. Both Sarah and Elizabeth are mental health professionals that treat women with HG in St. Louis, MO.
Title of Meeting: “HG Support Group”
Please join my meeting from your computer, tablet or smartphone.
(For supported devices, tap a one-touch number below to join instantly.)
You can also dial in using your phone.
United States: +1 (646) 749-3129
Australia: +61 2 8355 1050
Canada: +1 (647) 497-9391
United Kingdom: +44 330 221 0088
Access Code: 163-541-877
New to GoToMeeting? Get the app now and be ready when your first meeting starts.
Learn more about GoToMeeting and how to join a meeting.
Come Home to HER for HG Awareness Day 2019, and be a VOICE in the HG community, your local community, the media, or on social media! Help spread awareness about Hyperemesis Gravidarum! One voice. One story. YOUR story may be all it takes for someone to hear our message of education and advocacy, that HG is more than what you see!
- Meetup with another HG family.
- Donate to get more answers.
- Volunteer with the HER Foundation.
- Add our Facebook frames and join our Facebook event.
- Use the International HGAD logo.
- Wear a tougHGirls of HG tee.
- Be a VOICE…in the HG community, with the media, and on social media.
SHARE THE FACTS
- HG, hyperemesis gravidarum, is a pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting.
- HG is not the “morning sickness” of healthy, normal pregnancies. It is a distinct diagnosis marked by severe and relentless symptoms that pose significant risks to the health of both mom and baby. Over 1/3rd of HG babies do not make it to term.
- HG babies are at increased risk for low birth weight, small size for gestational age, and preterm birth. In utero exposure to HG is linked to a 3.6-fold increased risk of emotional/behavioral & developmental disorders.Nearly 20% of HG pregnancies are lost to therapeutic terminations, citing “no hope for relief.” Current treatments are not adequate to prevent termination of these planned, wanted pregnancies.
- Mothers with HG’s most severe forms can experience pneumothorax, organ rupture, retinal detachment and blindness, eardrum and jaw damage, rib fractures, esophageal tears, the neurological syndrome Wernicke’s encephalopathy, or even death.
- 18% of women report full criteria of post-traumatic stress syndrome (PTSS) following an HG pregnancy. More than half of mothers have post-traumatic stress symptoms.
- In 2009, inpatient treatment for HG in the U.S. cost more than $250,000,000. HG is the leading cause of hospitalization in early pregnancy, and is second only to preterm labor as the most common overall cause of hospitalization during pregnancy.
This year, we are celebrating HG Awareness all month long because the HER/UCLA/USC team has identified the first cause of HG! That is truly groundbreaking and only happened due to your donations and participation! Let’s spread the message far and wide that no longer can others erroneously claim HG is a psychological disorder! See all the activities on our FB Events page. Here is a summary:
- Thunderclap – shout the message simultaneously!
- Facebook Live on May 15
- Meetup with another HG family
- Donate to get more answers
- Use our Facebook frames
- Share our posts on social media
In response to the announcement of Catherine, Duchess of Cambridge’s third pregnancy and treatment for hyperemesis gravidarum (HG), the Hyperemesis Education and Research (HER) Foundation extends best wishes for the health of mother and baby during this joyful yet challenging time.
Distinct from “morning sickness” common in most healthy pregnancies, HG is characterized by weight loss, malnutrition, and dehydration due to severe vomiting and/or nausea. Severity and duration of symptoms vary, but HG remains the leading cause of hospitalization in early pregnancy and a debilitating medical condition that can have serious health consequences for both mom and baby. It is particularly threatening to mothers without immediate access to effective treatment and IV nutritional support.
“While the Duchess of Cambridge is undoubtedly receiving the proactive and knowledgeable care that has an enormous positive impact on her and the baby’s health, our hearts go out to her as she again experiences the disruption of health, work, and family life that many thousands of HG women endure each year.” said Kimber Wakefield MacGibbon, R.N., HER Foundation co-founder and director. “It is our hope that through increased funding for HG research, in addition to education, we can restore some of the pregnancy joy for mothers with HG, so they and their babies have a healthier future.”
The Duchess’s third pregnancy comes at a time of great promise and hope for HG women and families: Continue reading
What an exciting month for HG Awareness! From reaching and teaching docs at ACOG, the premiere OB conference, to HG Awareness Day on May 15, and the HER 5K Purple Bucket Run/Walk (with a 1 mile walk/run) on May 20th! The Purple Bucket Run is as much fun and awareness as it is fundraising for important genetics research to find a cause and cure for HG. Grant funding is rare for HG despite the devastating impact on families and the 1000’s of babies lost each year! Help us raise awareness and funding so more women and their children survive HG!
Our HG researchers and experts are attending the premier OB conference, ACOG, May 7-8 to take your messages about HG! OBs will receive a reusable lunch bag that reminds them that nourishing moms means a healthier future. We will also demo the HG Care app being developed with UCLA mHealth. Enter your message in the donation note box to join this exciting event! You can also fundraise to help us make the most of this exhibit.
HER is hosting #PTSDchat tonight at 6 pm PT (9 pm ET). Join us in a conversation about PTSD after HG via this special Twitter chat using the hashtag #PTSDchat.
Survivors of hyperemesis gravidarum may have problems with self-esteem, intimacy, guilt, and conditioned food aversions. Pregnant women may experience anxiety and depression related to helplessness from receiving inadequate treatment for hyperemesis, fear of the hyperemesis recurring in future pregnancies, painful and invasive treatments, and having to face the fear of serious harm or death to herself and/or her unborn child.
Click more information on this event.
Click here to go straight to the live hashtag during the chat (or at another time to read).
The HER Foundation has been helping generations of babies since 2003. Today we launch 2 weeks of fundraising so we can serve you even better. HER is the world’s largest network of hyperemesis gravidarum (HG) survivors and leading site for HG information worldwide. As such, we need to:
- update our site’s navigation to improve access to the many resources;
- pay for HER awareness events like the 5k;
- contribute to Dr. Fejzo’s research with USC and UCLA;
- attend & present at medical conferences;
- fund development of an app for HG moms.
Join our fundraising campaign on Crowdrise & learn more or donate now.