HER Foundation Online HG Support Group

As a service to moms with a current or prior diagnosis of HG, the HER Foundation will host free, monthly online support groups via GoToMeeting on the third Thursday of the month from 12:00 – 1:00 PM/CST. Currently, there is a limit of 150 participants. Follow the Facebook event for updates and reminders.

The purpose of this online support group is to help moms to connect with other survivors of this devastating pregnancy condition. Regardless of how long it’s been since your traumatic pregnancy with HG, we hope that by connecting we can continue to heal. These online groups will be facilitated by HER Foundation Board Members and HG survivors, Sarah Coffman and Elizabeth Lowder. Both Sarah and Elizabeth are mental health professionals that treat women with HG in St. Louis, MO.

GoToMeeting Invitation

Title of Meeting: “HG Support Group”

Please join my meeting from your computer, tablet or smartphone.

(For supported devices, tap a one-touch number below to join instantly.)

You can also dial in using your phone. 
United States: +1 (646) 749-3129 
Australia: +61 2 8355 1050 
Canada: +1 (647) 497-9391 
United Kingdom: +44 330 221 0088 

Access Code: 163-541-877 

New to GoToMeeting? Get the app now and be ready when your first meeting starts.

Learn more about GoToMeeting and how to join a meeting.

Come Home to HER for HG Awareness Day

Come Home to HER for HG Awareness Day 2019, and be a VOICE in the HG community, your local community, the media, or on social media! Help spread awareness about Hyperemesis Gravidarum! One voice. One story. YOUR story may be all it takes for someone to hear our message of education and advocacy, that HG is more than what you see!

  1. Meetup with another HG family.
  2. Donate to get more answers.
  3. Volunteer with the HER Foundation.
  4. Add our Facebook frames and join our Facebook event.
  5. Use the International HGAD logo.
  6. Wear a tougHGirls of HG tee.
  7. Be a VOICE…in the HG community, with the media, and on social media.
SHARE THE FACTS
  • HG, hyperemesis gravidarum, is a pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting.
  • HG is not the “morning sickness” of healthy, normal pregnancies. It is a distinct diagnosis marked by severe and relentless symptoms that pose significant risks to the health of both mom and baby. Over 1/3rd of HG babies do not make it to term.
  • HG babies are at increased risk for low birth weight, small size for gestational age, and preterm birth. In utero exposure to HG is linked to a 3.6-fold increased risk of emotional/behavioral & developmental disorders.Nearly 20% of HG pregnancies are lost to therapeutic terminations, citing “no hope for relief.” Current treatments are not adequate to prevent termination of these planned, wanted pregnancies.
  • Mothers with HG’s most severe forms can experience pneumothorax, organ rupture, retinal detachment and blindness, eardrum and jaw damage, rib fractures, esophageal tears, the neurological syndrome Wernicke’s encephalopathy, or even death.
  • 18% of women report full criteria of post-traumatic stress syndrome (PTSS) following an HG pregnancy. More than half of mothers have post-traumatic stress symptoms.
  • In 2009, inpatient treatment for HG in the U.S. cost more than $250,000,000. HG is the leading cause of hospitalization in early pregnancy, and is second only to preterm labor as the most common overall cause of hospitalization during pregnancy.

GET INVOLVED

 

 

 

International HG Awareness Day 2018

This year, we are celebrating HG Awareness all month long because the HER/UCLA/USC team has identified the first cause of HG! That is truly groundbreaking and only happened due to your donations and participation! Let’s spread the message far and wide that no longer can others erroneously claim HG is a psychological disorder! See all the activities on our FB Events page. Here is a summary:

  1. Thunderclap – shout the message simultaneously!
  2. Facebook Live on May 15
  3. Meetup with another HG family
  4. Donate to get more answers
  5. Use our Facebook frames
  6. Share our posts on social media
    Donate for_ResearchEducationAwareness

Happy Mother’s Day & HG Awareness Day!

What an exciting month for HG Awareness! From reaching and teaching docs at ACOG, the premiere OB conference, to HG Awareness Day on May 15, and the HER 5K Purple Bucket Run/Walk (with a 1 mile walk/run) on May 20th! The Purple Bucket Run is as much fun and awareness as it is fundraising for important genetics research to find a cause and cure for HG. Grant funding is rare for HG despite the devastating impact on families and the 1000’s of babies lost each year! Help us raise awareness and funding so more women and their children survive HG!

may 2017

Join #TeamHER for the 5K run/walk in Chicago or virtually!!

Join us at the beautiful Diversey Harbor on Saturday, May 20, 2017 for the Purple Bucket Run/walk, which includes a timed 5K run/walk & a 1 mile fun run with awards and a pizza party afterward! (Registration for pizza separate from race.) You can also run virtually/locally. All race proceeds benefit HER Foundation awareness and research. Show your appreciation for our sponsors and fundraise to make this the #BestRaceEver!

5k sponsors2

We’re hosting #PTSDchat on Twitter tonight, March 30th

HER is hosting #PTSDchat tonight at 6 pm PT (9 pm ET). Join us in a conversation about PTSD after HG via this special Twitter chat using the hashtag #PTSDchat.

Survivors of hyperemesis gravidarum may have problems with self-esteem, intimacy, guilt, and conditioned food aversions. Pregnant women may experience anxiety and depression related to helplessness from receiving inadequate treatment for hyperemesis, fear of the hyperemesis recurring in future pregnancies, painful and invasive treatments, and having to face the fear of serious harm or death to herself and/or her unborn child.

Click more information on this event.

Click here to go straight to the live hashtag during the chat (or at another time to read). 

ptsd mom

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