We Are Pleased to Announce The Second Annual HER5K to Be Held Saturday, May 31st, 2014, at 8:30am, at National Harbor. A Timed 5K Run/Walk and Kids Fun Run Dedicated to Helping Pregnant Moms Afflicted with HG. This Family-friendly Event Will Include Team Challenge, Food, Music, Activities For Kids and Prizes. Online Registration Coming Soon!
All proceeds generated from this race will be research and education of HG; as well as raise awareness of HG, the second leading cause of hospitalization during pregnancy.
For the past 10 years, the HER Foundation has become the largest grassroots campaign dedicated to Hyperemesis Gravidarum (HG) education and research. The HER Foundation has helped thousands of women get through debilitating pregnancies marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting, that may result in adverse consequences for the moms-to-be and newborn(s).
We have received emails expressing concern over the recent article citing possible cardiac complications due to the use of Zofran. However, the risk was stated by the FDA to be in patients given 32 mg of Zofran in a single dose, which is not done in pregnancy or for HG. While safety is not proven for any drug during pregnancy, it appears that any potential risk of Zofran is quite low and needs to be assessed with an understanding of the risk of not using the medication. Read more >>
As we celebrate the HER Foundation’s 10th anniversary, we’re pleased to announce a new tradition with our First Annual ‘HERoes For HG’ Awards.
Please join us in a round of applause for a group that includes extraordinary volunteers, healthcare providers, maternal health partners, and media.
At the HER Foundation we are ushering in our 10th anniversary with what we hope will be a fun and inspiring celebration, marked by gratitude for the achievements of the past decade and vision for the future of HG awareness, research, treatment, and support.
Among the highlights:
- A 10-day social media party on our Facebook page and Twitter handle, October 14th through 23rd.
- A “10 for HER 10″ Giving Challenge aimed at jumpstarting funding for the next decade of HG help and hope.
- Our First Annual “Heroes for HG” Honors, to be announced on our website and social media October 22nd.
Please join us in celebrating 10 years of help and hope – and in looking forward together, toward the next decade of advocacy for HG moms.
The HER Foundation is bringing the voices of HG women to a research conference at the University of Pittsburgh in early October. The Biology and Control of Nausea and Vomiting 2013 is targeted to both basic researchers and clinical investigators working in the field of nausea and vomiting. The conference will be useful for clinicians needing up-to-date information about treatments for nausea and vomiting, such as in patients suffering from hyperemesis gravidarum (HG).
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On June 23, 2013, 144 golfers came out for the 19th annual Brayton Point Station Charity Golf Tournament. Brayton Point Station is the largest fossil fuel power plant in New England. Station employees, family, friends and vendors came out to support this years charity, the HER Foundation. Typically a charity is selected because an employee is with the charity or has been impacted by it. The HER Foundation had a special meaning for me this year as my wife Pia is a three time survivor of HG. The tournament committee (Wes Bushika, Mark Huck and Bill Spicer) would like to thank this year’s guest speaker Doreen Scanlon, HG survivor and news anchor with ABC Channel 6 in Providence RI. The committee is excited to present the HER Foundation with an 11 thousand dollar donation!
One of the reasons the HER Foundation was created was to fund much needed research on HG. With the help of UCLA’s David Geffen School of Medicine we have funded over $46,000 in research grants. Thanks to all of the HG moms who have participated in our research! Because of you, UCLA has been able to identify medications (antihistamines) and other factors (gestational hypertension, early symptoms) linked to preterm birth and low birthweight babies in hyperemesis pregnancies. See Table 5 for the list of over 35 medications/treatments used compared to pregnancy outcomes and effectiveness. Share this research with your medical providers so you can make informed decisions together on how to treat your HG.
Download the Full Study Here.
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The HER Foundation has been overwhelmed with the response we have received for the 2nd Annual HG Awareness Day (May 15th) evidenced by 400% more visitors to the HER website the past week, as well as the most widespread reach ever on Facebook and Twitter.
We received great support from some of our partners and supporters. We’re grateful to HG moms across the globe who shared powerful personal stories in social media today, and to all who took action to educate and advocate.
From the Reporting on Health Member Blog, December 10, 2012
Dear Media: Kate Middleton Does Not Have “Morning Sickness”
The world’s most famous pregnancy brought overnight visibility to a little-known but serious prenatal complication, when Britain’s royal family announced the Duchess of Cambridge’s hospitalization for treatment of hyperemesis gravidarum (HG) – a debilitating and even life-threatening condition marked by severe, unrelenting vomiting and/or nausea that can lead to rapid weight loss, malnutrition and dehydration, with potentially dangerous health consequences for both newborn and mother.
Read the full article here.
The HER Foundation and Ashli Foshee McCall are like old friends — they go way back and have been working together to help HG women around the globe. For many years, Ashli has donated her books to the HER Foundation to help us raise money for awareness, education and research. Ashli has just released a new book, “The Chronicles of Nausea.” A diary of her successful battle with HG in her fourth and most difficult pregnancy, “Chronicles” is an inspiring “must read” for all women coping with the disease. The HER Foundation thanks Ashli for her continued support for HG women and the HER Foundation. We recently asked her a few questions about HG and her books.
Purchase any of Ashli’s books here.
We’ve developed some different sizes of buttons that you can use to post on your own site. Just link them back to www.helpher.org. Let us know if you need any other sizes!
A huge thank you to the Million Moms Challenge for all their support over the last year. The HER Foundation is so proud to be on their list of top 12 triumphs of 2012. We look forward to working with them to raise awareness for HG women around the world in 2013! Every woman deserves good healthcare during pregnancy!
Thanks to National Healthy Mothers, Healthy Babies Coalition for inviting the HER Foundation to guest write for their monthly blog to help raise HG awareness! Click on our guest blog below and after reading, please be sure and leave your comments with HMHB to let them know you appreciate their support! We also send happy and healthy birthday wishes today to Duchess Kate Middleton, whose pregnancy recently made global headlines when she was hospitalized with hyperemesis gravidarum (HG).
We’ve complied a chart that differentiates between morning sickness and Hyperemesis Gravidarum.
We’ve compiled a chart that describes the Severity Levels of Hyperemesis Gravidarum.
The HER Foundation has formed an alliance with CaringBridge, a nonprofit offering many ways for people to care for each other during any type of health event. CaringBridge services are available online 24/7 to anyone, anywhere at no cost. CaringBridge offers protected online spaces with multiple privacy settings. Personal data is protected and not sold. People don’t see intrusive advertising on CaringBridge sites and planners. Continue reading
Meet Lake Placid Ironman competitor Grant Quick. He has seen first hand what HG does to a woman because his wife, Brynn, has suffered a great deal from HG this year. Brynn is due to give birth to their son by the end of the month and Grant wants to do what he can to raise awareness and funds for The HER Foundation. “The HER Foundation was a huge support to us when Brynn was going through the worst of Hyperemesis Gravidarum.”
The HER (Hyperemesis Education & Research) Foundation proudly presented a check for more than $46 thousand to Dr. Marlena Fejzo, geneticist, of the David Geffen School of Medicine at UCLA on Friday, September 14th. The donation will fund continued groundbreaking research on a relatively unknown, debilitating pregnancy condition called Hyperemesis Gravidarum, or HG.
Dr. Marlena Fejzo wants to share her story with you about HG and share why she is so dedicated to the cause. She is grateful for the help of the HER Foundation over the past few years in helping fund and recruit participants for her research. Dr. Fejzo is truly one of the leading researchers in the world for HG. Her letter is to all HG women and their families who have endured the challenges of HG in pregnancy and how it has affected their lives.
Thanks to Angela and Justin Phelps of the Lansing Michigan area for sharing their story of HG with their local FOX affiliate, WLIX! You both did a great job and have helped raise awareness for HG! We also want to thank Dr. Robert Seiler for his words about HG as well. Raising public awareness is vital to the cause and we truly appreciate your efforts. A special thanks to the reporter, Caroline Vandergriff for mentioning the HER Foundation’s continuous efforts in raising awareness, education and research for HG women and placing our petition campaign on the FOX website. Little Nina is precious and an HG survivor just like her mommy!
HER has exciting news…..May 15, 2013 will be recognized by Chase’s Calendar of events as the official HG Awareness Day! Chase’s Calendar has been the world’s datebook for more than 50 years. Chase’s Calendar of Events 2013 will be published in September of 2012 and will list May 15th as the official HG Awareness Day! Chase’s Calendar of Events is the most comprehensive and authoritative reference available on special events, worldwide holidays and festivals, civic observances, historic anniversaries, famous birthdays and much more. We have finally made the record books thanks to your support! This is one BIG step for HG awareness worldwide.
We want to thank you for the incredible efforts by HG women and their families around the globe for a truly amazing First Annual HG World Awareness Day! The day was a GREAT success thanks to you! The support we received from women around the globe and their efforts touched our hearts and made our determination even stronger for finding an answer to why HG happens and finding a cure. The notes we have received from women and their families about how the HelpHER.org website helped them get through their pregnancies truly means a lot to us and when we started the website over 8 years ago, we knew women needed a place to find support and know they were not alone in their suffering. We are so glad you found some comfort and support during your pregnancies. Continue reading
Amanda Tynes is a two time survivor of HG and the wife of the NY Giants kicker and SuperBowl Champion, Lawrence Tynes. “I am excited to add my voice and personal story with HG to the HER Foundation’s mission of increasing awareness and procuring funding for education and research. HG is a terrible disease that very few doctors or nurses seem to understand. Pregnant women around the world are suffering every minute of everyday with no answers or help to get them through their pregnancies. HG needs to be researched and studied by the medical community so these women don’t feel alone and helpless to a condition they cannot control. No more lives need to be lost because of the lack of research of this horrific disease” said Tynes. “We are thrilled to have Amanda on board with us to help raise awareness, research and education funding for HG. Amanda’s story is one that many HG women will identify with and we know Amanda’s passion for making a difference for HG women around the world will truly help our efforts,” said Ann Marie King, Co-Founder of the HER Foundation. As part of celebrating the first annual world awareness day on May 15th, this year Amanda and her husband signed the HER Foundation petition asking the United States government to start funding HG research. In the months ahead Amanda will join with founders of the HER Foundation in meeting with government officials and medical associations to discuss HG and its effects on women around the globe.
The HER Foundation thanks Governor Daugaard for proclaiming Hyperemesis Gravidarum Awareness Day on May 15th, 2012 for the state of South Dakota. “We want to thank Governor Daugaard for being the first Governor to recognize HG awareness day and we are encouraged by his recognition of the need for awareness for HG women in his state. We hope it will inspire state lawmakers to follow in his footsteps for future Awareness Days. This is a huge step in raising awareness, education and research and we are truly grateful,” said Ann Marie King, Co-Founder of the HER Foundation.
They will be following her throughout her pregnancy. Please take time to send her some kind words of encouragement and support.
View her story Part One
View her story Part Two
Thanks to ABC6 for allowing the HER Foundation to share her story.
Mel will receive a $200 gift card from Amazon thanks to her recruiting skills! Way to go Mel, thanks to your efforts and that of your friends the HER Foundation and USC/UCLA are closer to reaching thier research goal! We are looking for both HG and non-HG mom’s to be a part of the study, so please email firstname.lastname@example.org to join, it truly is the most important thing you can do to make a difference for HG moms in the future!
Time is of the essence as the budget crisis is likely to lead to cuts in NIH funding next year which will include our HG study if we don’t enroll and collect all our saliva samples before the cuts are in effect. Please participate (contact email@example.com) and please follow through with the HG study now.
An extreme form of pregnancy-related nausea and vomiting known as hyperemesis gravidarum (HG) takes a heavy toll on thousands of women each year and can lead to hospitalization and pregnancy termination. But this new research suggests pregnant women are not the only victims.
(Reuters Health) – A woman’s chances of experiencing severe nausea during pregnancy appear to be influenced, at least in part, by genetics, according to these new study findings.