they rang my doctor

[lizzie]

Ok so im not sure if this goes here but i have to vent!
I was having a reasonable day yesterday when a so called friend dropped around , I had just put an IV drip in when he rocked up (I am qualified to do so) . anyway as i was on the IV i didnt vomit for the time he was at my house , i was also able to sip around 30 ml of milk over the hour, i also had 8mg of zofran (which was the prescription dose) , that being said i also didnt get up off the couch.
anyway the very next day i received a text message basically saying i had made it up, "everything that could go wrong with me always went wrong and it never checked out" and whats worse there was also a message saying "im going to ring the doctors because i have never herd of HG and i think you are self medicating and diagnosing"
all because the one day out of four weeks someone decides that because i am not vomiting im 'fine' and making everything up , it really hurts me the most because the second he left i threw up 1.5 litres of vomit all over myself. the medications im on were prescribed by my doctor , i was diagnosed with HG at 5 weeks by a specialist in the hospital and this disease has nearly killed me from a reaction ... but apparently no i like the attention of loosing 14 kg and not being able to get out of bed sooooo much that i made all of this up? someone tell me how do i deal when all i ever hear is people saying "i haven't herd of HG so your making it up"

[Evaandbump]

OMG! I can't believe this! You must be hopping mad. If there is one thing worse than the disease it's when people don't believe you. I didn't get that exact statement from people, but my MIL did read that it doesn't last past the 5 month mark (20 weeks) and so told me I didn't still have it, that it was just MS at this stage.

It gets to a point where you just have to tell yourself that you don't need to justify yourself to other people. Some people just don't have a clue. I'm so sorry you were crackered like that. I'll hit them for you if you want!

xxx

[Shanza]

thats sad sorry to hear of your so called friends saying this!
I have 1 gf who is fantastic she doesn't understand whats going on but she knows it's not just m/s she'll come around at the drop of a hat to help or watch the kids as I make a wonderful hospital visit.
But I have Dr's do the same shit to me! i've seen 12 drs now and still search my last was the ob and she wants to "ween" me off zofran like i'm some kinda of addict I mean I get a whole 10 tablets a month! No where near enough.

You just have to learn to ignore people it's times like these that you find out who you true friends and family are! Cherish those who amaze you and ignore those who think they know better! xxx

[E-Mom]

During HG, just do your best. Your job is to take care of you and your baby.

The women here understand and we have all been crackerd in one way or another.

After HG, (only if you're up for it, because you'll have your hands full and it's hard to come back here once you're well), you can volunteer for the HG study at USC (almost as easy as spitting in a cup), buy or make sure your library has "Hyperemesis Gravidarum: Beyond Morning Sickness" by Ashli McCall (or give it away as Christmas gifts), help HG girlfriends in your community or on this board. I try to educate people when it's appropriate, but it's definitely a cause of mine.

Your friend just took you down at your weakest moment and I wish that didn't happen.

[luptus2000]

I would never call this person "MY FRIEND"

[slterwil]

I agree with the poster above, I don't think that person qualifies as a friend. The good news is all of us on here believe you. We know how much it sucks. Vent away. We can't help that other people just don't get it. I'm at a loss for how to explain how the constant nausea is for me worse than puking. The best I can compare it for folks is if they've ever had a violent stomach flu or food poisoning and then times the feeling of helplessness and awfulness by a few months and welcome to my world. Is your SO understanding? My poor hubby is probably sick of hearing me complain, but the blessed man keeps his mouth shut if he is:-) If it weren't for him there are days where when I try to make it hour by hour that I wouldn't be able to get through. This is such a lonely illness. I feel isolated and misunderstood all the time. Hang in there. Even though it's miserable now the prize is worth it. When I had a major knee realignment last year that had me reteaching myself how to walk and wheelchair bound with a one year old just learning how to walk, the only thing that got me through was the phrase "visualize success." For me there was no alternative outcome to the surgery and recovery process. I couldn't go there. I'm now nine months out from my op and am 95% which is great because it was supposed to take a year to get back to normal.