HG Awareness day/week?

[*Mel*]

Is there an HG awareness week/day? I think it would be neat to have one.

[justme]

Mel, I was just thinking about this last night. And seeing how super organized Victoria is for EE awareness week I was inspired. Here are some thoughts I had . . .

1 Day HG Fast and Facts

Everyone (not pg people) will fast for 12 hours one day to see what is like to not be able to eat - as we all know.

And every hour we will send out some hg facts . . . like complications for the mother, complications for the baby, etc.

I'm thinking of doing this through FB and email.

[*Mel*]

I'm with you. we could organize something. Im all for this. one day could be to see if we could get donations for HER ect. Yes, I've been seeing a lot of awareness days. Also one day print out pamphlet and take them to the nearest OB office or the one you went too.

[eliana1300]

I gotta say, I really wish we did have an awareness day/week/month. I think the color for HG is purple, but I could be wrong. But, with so many women on here and so many being newly diagnosed every day, perhaps it's time to form an Awareness campaign?

[justme]

Well, here's what we can do (sorry, I'm type A and organize things for a living - it's a double whammy).

1. Contact Kimber and find out:
A. A good date
B. A logo (HER logo?)
C. A color
D. Set up a main organizer/contact person
E. Come up with a variety of facts and organize them in the manner we want them to be distributed; determine if there are any props or tasks that we would like to go along with said facts

2. Get people here committed to participating; make sure they have a clear outline of events

3. Main organizer sends out reminders and such

[SLO+MLO.Mommy]

Sounds great to me.

[*Mel*]

Karen- You want to contact Kimber about the day?! or week or ask permission etc?! Also,

I did find an HG color ribbon on the internet before it was blue and pink, for Boy or girl. But I don't know what everyone thinks.. Don't know if there is a "color" for HG.

I mean I could organize things, I think there should be a few contact people just in case it gets overwhelming for one person.

[justme]

Mel, I contacted Kimber. So we'll wait and see what she thinks and then discuss more . . .

Karen

[sweetpea]

I actually asked Kimber about this a week or so ago. She said there is not currently an HG awareness day/week.
She said there has been talk of trying to get it set up for either the same week as other pg problems, of for the week of Charlotte Bronte's birthday b/c she died of HG.
I would vote for Charlotte Bronte's birthday so we don't get pushed to the side, and not get recognized for the seriousness of this disease.

[kirstyx]

Hi

Am interested in helping i'm in the uk and the lack of support and knowledge here is outragous x

I have set up a FB group called Hyperemesis Gravidarum awearness and am hoping it will start to take off and help me help others who have never heard of HG and to try and offer advice and support xx

Please keep me informed of the awearness day / week as i will organise something for the uk too xx

[eliana1300]

I am curious about this again, and I actually had another thought (scary I know), which may actually its own thread here. What about a conference for HG? I am not necessarily talking about something for non-HGers, but a place where we could find out info about birth control options for those that can't handle hormones or oral doses of them. Drs can speak about when the current condition requires a dr call or an ER visit. Specialty stands set up to discuss nutrion, calories, and foods/drinks with special nutrients. There could even be a stand for the UCLA research study, and a place for information about our HGlets. Things like that... Things we always chat on here about but sometimes it is disjointed information or we find the post that is relevant but it is a few years old and we are unsure about it.

I am just thinking about how many other groups have conferences for things, like allergies, autism, diabetes, and other stuff. I would love to attend a conference like this to prepare for another baby and what to do after that to not have any more permanently. Any one else?

[nekorachan]

Eliana, that's exactly what i've been wanting to do! i've even sketched out some ideas...i'd love to work with a few ladies to get this done. any takers?

[DivineLotus]

I'm just throwing it out there. Just a meh...

A commercial.

I know the $ would be a lot. Maybe someday. I always get ahead of myself but when this happens and ppl say 'whats is that?' (Like the ASPCA commercial which everyone knows one.) Then... that would most likely make me cry tears of joy. And a cure.

(I also wanted to add that I meet a woman that had, I believe, HG with her pregnancy. She described to the T the symptoms and similarities of my HG, yet no doc told her she had HG. Just really bad MS. She also wants to ttc for baby #2 but is extreamly afraid to get pregnant again. Sounds familiar.)

[shellylong]

It would be great if this disease could be acknowledged! Not to be selfish but I hope one day HG could have as much awareness as breast cancer does

[annmarie]

Hi Ladies,
Just wanted to let you know I am in the beginning stages of trying to figure out how to create a national HG day/week. If any of you have done research and would be willing to share I would really appreciate it. I know there is a specific organization and approval process that you have to go through to make it official in the United States. From there we can move onto Global. Please email me at annmarie@helpher.org

In regards to the conference, we have a long way to go. Unfortunately this has been on our radar for years. The cost alone is overwhelming for our organization, which has very little funding. All the donations we receive go towards keeping the website up and running, research and some accounting. Until we have received a large grant or get government funding we don't have the funds. We will get there, but we need a big grant! Plus, it would be helpful if the medical community would take it more seriously. This is why our focus on research is so important right now, because unless the doctors see research findings in medical publications that show them what is needed they will not be interested in helping HG women. So research, research, research!

[MichellevsHG]

Is there anyone available to write applications for grants? I know they are there, but I do not know the first thing about grant writing. There's only one person in my large school district who does grant writing. I'm sure medical grants would be more time consuming.