HG Study-PLEASE contact now, participate later

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HG Study-PLEASE contact now, participate later

Postby Kimber » Aug 21, 2007 6:37 pm

I am deeply moved by those of you who have contacted me from your hospital bed to participate in our study. Having suffered from HG twice, I know it is nearly impossible to motivate when getting through each day is such a struggle. I wanted to let those of you who are currently suffering know that you or a loved one can contact me at nvpstudy@usc.edu and just put in the subject line or text "HG NOW" and that way I can put your email address in our database and contact you in the future when you are feeling better to officially enroll you in the study. We need 1,000 participants who have had HG treated with iv or tpn or feeding tube to discover the biological cause and hopefully cure for HG and we currently have 316 participants. Each one of you is needed to help bring us that much closer to the cause and cure!

Sincerely,

Marlena nvpstudy@usc.edu
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Everyone counts!

Postby mfejzo » Nov 13, 2007 11:21 pm

Hi all. We hit the 400 mark---but we need 1,000 of you out there!!!) We really need everyone who has had HG to participate to find the biological cause of HG. If you are too sick to participate now, please have a caretaker email me (nvpstudy@usc.edu) with your contact email and put HG NOW in the subject line so I can get you in the system and contact you when you are feeling better. Please spread the word about the study by passing my email address out to your nurses and obstetricians and any friends with HG. You do not need to currently be pregnant to participate, you just need to have suffered from HG treated with iv hydration at least once. There is no cost or travel to participants living in the US. The survey can be filled out online and we will send you a kit in the mail to collect your saliva. This study is the first step to finding the cure for HG. Please help make a difference so the next generation doesn't have to suffer like we did.
Sincerely,
Marlena Schoenberg Fejzo, Ph.D, nvpstudy@usc.edu
HG Researcher and 2X HG sufferer
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Postby lucinda » Nov 20, 2007 5:00 pm

How do I sign up? I also know 2 more survivors.
Lucinda Joseph
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HG study

Postby mfejzo » Nov 20, 2007 6:14 pm

Please email me and have your fellow HGers email me at:
nvpstudy@usc.edu to learn more and check your eligibility.
Thanks!
Marlena
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Postby mfejzo » Dec 08, 2007 12:38 am

Seasons Greetings Everyone! Please think of our future HG sufferers (our daughters and grandaughters) this holiday season and participate in the HG study that will help us find the biological cause of HG and bring us one step closer to putting an end to the misery! Thank you to all of you 426 participants-each of you is bringing us baby steps closer and are a critical piece of the puzzle that is HG!

I also wanted to let you know that we have isolated DNA from over 100 of you HGers and your friend controls and are almost ready to start some preliminary testing of candidate genes. I will keep you posted on the research forum of any results. Also, we are almost done with the online survey and you will be hearing from me, hopefully before the end of January, so I can let you know the link to it on the HER website.

I know it is a busy time of year for everyone, so I appreciate all of you who have contacted and followed through with the study! For those of you who are ill, please email me at nvpstudy@usc.edu and put "HG NOW" in the header and I will put you in my file and contact you in six months when you will hopefully be feeling better.

Happy Holidays!

Marlena (PLEASE CONTACT: nvpstudy@usc.edu)
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Too late for study?

Postby Sheree » Dec 14, 2007 11:19 pm

I am currently 15 wks and this is my 4th time to suffer. Is it too late to sign up? I also am having problems trying to respond through the outlook express.
Thanks,

Sheree
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HG study

Postby mfejzo » Dec 15, 2007 12:14 am

You are not too late and we need you! Please email me from your email account at nvpstudy@usc.edu or send me your email address through here and I will email you, or call me at 310-210-0802 (I usually only answer calls on fri, so it may take awhile to get back to you by phone).
Thank you for contacting me while you are ill!
Marlena
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interested in helping in study

Postby Sheree » Dec 15, 2007 12:38 am

My email is shereegothard@grandecom.net
Thanks

Sheree
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hg study

Postby DeAnna » Dec 16, 2007 1:43 pm

Please add me to the 400 that you have. I also have a friend who suffered at the same time as I did. Please let me know what you need me to do. I suffered 3 times. I am not currently pregnant but am still traumatized.
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Postby mfejzo » Dec 16, 2007 6:14 pm

Thanks for your email. Please email me and have your friend email me directly at nvpstudy@usc.edu or give me your email addresses here and I will email you from the study email to give you the information. Alternatively, you can call me and leave a message at 310-210-0802, but it takes me some time to get back to phone calls so I prefer email.
Thanks and looking forward to hearing from you!
Marlena
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Postby sarahjade » Jan 09, 2009 7:14 pm

I would like to take part now if that is possable

SarahJade
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HG study

Postby mfejzo » Jan 09, 2009 9:16 pm

Great-Please contact me at the official study email address
nvpstudy@usc.edu so I can start the process with you.
Thank you!
Marlena
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Postby Nezabudka » May 03, 2010 1:14 pm

I e-mailed you but I might be late. i come from HG family ( both my mom and sister) however - not Gma or anyone else. I battled it 2 times and blessed with 2 beautiful kids - a girl ( 7) and a boy (1). During the boy last pregnancy i was sure he will be my last, i wanted to die... Now I want another one espesially that I found you and this site and already got so many w ideas, i got medicine and want to start TTC after summer =)
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Re: HG Study-PLEASE contact now, participate later

Postby linguistnyc » Feb 04, 2015 12:59 pm

Hi! I would love to participate! I had HG my first pregnancy and am pregnant again--5 weeks--not sick yet, but who knows...
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Re: HG Study-PLEASE contact now, participate later

Postby Emilly » Mar 13, 2017 9:11 am

Can I participate now my email address is emilly.lynn@outlook.com. Please send me relevant information since Im new here.
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