What an exciting month for HG Awareness! From reaching and teaching docs at ACOG, the premiere OB conference, to HG Awareness Day on May 15, and the HER 5K Purple Bucket Run/Walk (with a 1 mile walk/run) on May 20th! The Purple Bucket Run is as much fun and awareness as it is fundraising for important genetics research to find a cause and cure for HG. Grant funding is rare for HG despite the devastating impact on families and the 1000’s of babies lost each year! Help us raise awareness and funding so more women and their children survive HG!
Our HG researchers and experts are attending the premier OB conference, ACOG, May 7-8 to take your messages about HG! OBs will receive a reusable lunch bag that reminds them that nourishing moms means a healthier future. We will also demo the HG Care app being developed with UCLA mHealth. Enter your message in the donation note box to join this exciting event! You can also fundraise to help us make the most of this exhibit.
Join us at the beautiful Diversey Harbor on Saturday, May 20, 2017 for the Purple Bucket Run/walk, which includes a timed 5K run/walk & a 1 mile fun run with awards and a pizza party afterward! (Registration for pizza separate from race.) You can also run virtually/locally. All race proceeds benefit HER Foundation awareness and research. Show your appreciation for our sponsors and fundraise to make this the #BestRaceEver!
As we say goodbye to an amazing year, we welcome 2017 and eagerly await the exciting events ahead. From a 5k to medical conferences and new research, HER will achieve even more this year. We have impacted the lives of over 17,000 women this past year, and thanks to your donations, are able to be your voice at the largest OB conference, ACOG, in May 2017. See our end of the year report:
With your help, we will make 2017 the #BestYearEver!
HER joined CrowdRise, the largest crowdfunding platform for charitable giving, to participate in the @CrowdRise Giving Tower, its #GivingTuesday campaign. Show your support by fundraising for HER to help us exhibit at the largest OB medical conference in May 2017 to be YOUR voice. Post your #unselfie on November 29th, #GivingTuesday with the message that you support HER! The most creative #unselfie will receive a prize. For a printable “I support HER” sign (see below).
They say when you see those two little lines on your home pregnancy test, your life is forever changed. As I wrestled my 9 month old into his pj’s I can say this is very true. However, sometimes life changes in ways we couldn’t imagine. When you see those two lines you start picturing the future filled with happy moments, you don’t imagine sadness and loss.
You probably heard the statistics, 1 in 3 HG pregnancies ends in a loss, but from personal experience, I can say that means little until you join the 1 in 3.
I had been tracking my cycles for a while when my husband and I started trying to conceive. After 14 days of high temps and a gut feeling, I awoke early one morning and took a test. As the two lines appeared, all my cute Pinterested ideas for sharing the news with your spouse disappeared, as I ran through the house screaming, “Look, look, there are TWO lines!!!!!”. It was a joyous moment, one to remember forever.
Sign up for our upcoming news alerts and events info here. We look forward to an exciting upcoming year and have some exciting research in process. What can you do to help? Try a creative fundraiser like Andria did (read more below) and review our list of ways you can make a difference: http://www.helpher.org/about-her-foundation/volunteer-help-her.php.
Fundraiser Spotlight: HG: Pregnancy 101 for TougHGirls!
Read about Andria’s successful event with puke bucket games and raffles.
A study published by UCLA and supported, in part, by the Hyperemesis Education and Research Foundation found no evidence linking Zofran to birth defects.
“What was really significant to me was that women with extreme morning sickness who took Zofran reported fewer miscarriages and terminations and experienced higher live birth rates,” Fejzo said. “Taking this medication helped them get through their pregnancies and gave them their desired outcome, a live birth.”
Marlena Fejzo, PhD
HER is hosting #PTSDchat tonight at 6 pm PT (9 pm ET). Join us in a conversation about PTSD after HG via this special Twitter chat using the hashtag #PTSDchat.
Survivors of hyperemesis gravidarum may have problems with self-esteem, intimacy, guilt, and conditioned food aversions. Pregnant women may experience anxiety and depression related to helplessness from receiving inadequate treatment for hyperemesis, fear of the hyperemesis recurring in future pregnancies, painful and invasive treatments, and having to face the fear of serious harm or death to herself and/or her unborn child.
I had a niggle*. A niggle that remained after all plausible causes for my bouts of sickness and fatigue were eliminated and two whizzy sticks later the niggle was confirmed. There was a bundle of joy! I was brought to my knees – in the bathroom. Repeatedly!
“Morning sickness is part of the pregnancy!”
“It won’t last. Once you hit 3 months, it’ll go”
So I persevered. I met my midwife. I didn’t think to tell her that I was sick all the time. Brushing my teeth made me spew. My flatmate’s perfume made me spew. The smell of coffee, jerky braking on transport, moving from my bed to upright. Morning noon and night. It was relentless, exhausting, and I felt pathetic.
I thought “I’m failing at motherhood already.” Eight weeks in, and I was falling apart. Unable to get a handle on basic day to day things, perform at my job – let alone nourish my newly growing Bundle. But this is normal right? Just the untold aspect of morning sickness surely? I needed to pull myself together.