Come Home to HER for HG Awareness Day

Come Home to HER for HG Awareness Day 2019, and be a VOICE in the HG community, your local community, the media, or on social media! Help spread awareness about Hyperemesis Gravidarum! One voice. One story. YOUR story may be all it takes for someone to hear our message of education and advocacy, that HG is more than what you see!

  1. Meetup with another HG family.
  2. Donate to get more answers.
  3. Volunteer with the HER Foundation.
  4. Add our Facebook frames and join our Facebook event.
  5. Use the International HGAD logo.
  6. Wear a tougHGirls of HG tee.
  7. Be a VOICE…in the HG community, with the media, and on social media.
SHARE THE FACTS
  • HG, hyperemesis gravidarum, is a pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting.
  • HG is not the “morning sickness” of healthy, normal pregnancies. It is a distinct diagnosis marked by severe and relentless symptoms that pose significant risks to the health of both mom and baby. Over 1/3rd of HG babies do not make it to term.
  • HG babies are at increased risk for low birth weight, small size for gestational age, and preterm birth. In utero exposure to HG is linked to a 3.6-fold increased risk of emotional/behavioral & developmental disorders.Nearly 20% of HG pregnancies are lost to therapeutic terminations, citing “no hope for relief.” Current treatments are not adequate to prevent termination of these planned, wanted pregnancies.
  • Mothers with HG’s most severe forms can experience pneumothorax, organ rupture, retinal detachment and blindness, eardrum and jaw damage, rib fractures, esophageal tears, the neurological syndrome Wernicke’s encephalopathy, or even death.
  • 18% of women report full criteria of post-traumatic stress syndrome (PTSS) following an HG pregnancy. More than half of mothers have post-traumatic stress symptoms.
  • In 2009, inpatient treatment for HG in the U.S. cost more than $250,000,000. HG is the leading cause of hospitalization in early pregnancy, and is second only to preterm labor as the most common overall cause of hospitalization during pregnancy.

GET INVOLVED

 

 

 

Got ketones?

The International Colloquium on HG in London (Oct 5-6) was a great success! Two presentations (1, 2) explained how ketones should not be required to be diagnosed with HG or given treatment. Some women are denied IV fluids if they do not have ketones.

What are ketones? They are produced when the body is starving and uses fat versus carbohydrates as fuel.

Ketones do not always correlate with weight loss or symptoms severity. They do predict a longer duration of hospitalization.

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The 3 most important things to do if you have Hyperemesis Gravidarum (HG)

  1. Find a doctor who offers compassionate and expert treatment of HG. The HER Foundation website has a list of doctors throughout the United States and in over 15 countries worldwide. These doctors have been recommended by those who experienced HG.
  2. Find an advocate to speak on your behalf to doctors, nurses and family/friends so they know what you need and how you are responding to treatment. When ill, it’s difficult to remember details and deal with issues about managing HG.
  3. Find an educated group of HG women who know what you are enduring. This is why the HER Foundation was created over a decade ago. So many myths surround HG, people will make rude and insensitive comments like “Just eat some crackers” or “Oh, I had that and just had to force myself to eat.” HG survivors can help you deal with those uneducated about HG and direct you to HER Foundation web pages with expert information you can share with them. You will find support on our website forums and Facebook page.

The HER Foundation can help you find a doctor in your area and provide you with a supportive volunteer. If you need immediate help contact GetHelpNow@HelpHER.org.