What an exciting month for HG Awareness! From reaching and teaching docs at ACOG, the premiere OB conference, to HG Awareness Day on May 15, and the HER 5K Purple Bucket Run/Walk (with a 1 mile walk/run) on May 20th! The Purple Bucket Run is as much fun and awareness as it is fundraising for important genetics research to find a cause and cure for HG. Grant funding is rare for HG despite the devastating impact on families and the 1000’s of babies lost each year! Help us raise awareness and funding so more women and their children survive HG!
As we say goodbye to an amazing year, we welcome 2017 and eagerly await the exciting events ahead. From a 5k to medical conferences and new research, HER will achieve even more this year. We have impacted the lives of over 17,000 women this past year, and thanks to your donations, are able to be your voice at the largest OB conference, ACOG, in May 2017. See our end of the year report:
With your help, we will make 2017 the #BestYearEver!
A study published by UCLA and supported, in part, by the Hyperemesis Education and Research Foundation found no evidence linking Zofran to birth defects.
“What was really significant to me was that women with extreme morning sickness who took Zofran reported fewer miscarriages and terminations and experienced higher live birth rates,” Fejzo said. “Taking this medication helped them get through their pregnancies and gave them their desired outcome, a live birth.”
Marlena Fejzo, PhD
HER is hosting #PTSDchat tonight at 6 pm PT (9 pm ET). Join us in a conversation about PTSD after HG via this special Twitter chat using the hashtag #PTSDchat.
Survivors of hyperemesis gravidarum may have problems with self-esteem, intimacy, guilt, and conditioned food aversions. Pregnant women may experience anxiety and depression related to helplessness from receiving inadequate treatment for hyperemesis, fear of the hyperemesis recurring in future pregnancies, painful and invasive treatments, and having to face the fear of serious harm or death to herself and/or her unborn child.
Representatives from 12 nations convened in Bergen, Norway last week to present the latest research on HG at the First World Colloquium on Hyperemesis Gravidarum. HG researchers, obstetricians, psychologists, leaders of support groups, and HG patients were present. The Chair of the Conference, Jone Trovik, plans to create an International Society for HG Research. Creating guidelines for core outcomes and priorities for future clinical trials were discussed. The group plans to reconvene in 2 years.
An important part of the HER Foundation’s mission is empowering families with facts, resources, and tools to advocate for needed care during pregnancy. Therefore, our website is rich with information for HG Moms and families. Here are some of the most popular pages:
Read our Survival Guides with tips and strategies for coping with HG. Also find downloadable tools to document and journal symptoms.
Medications, typical dosages, side-effects, and related research can be viewed on this page.
Find or add a health professional at this link. The Referral Network is updated on an ongoing basis as moms submit health professionals worldwide.
Find the info to make a medical protocol prior to conception as well as physically and mentally prepare for another HG pregnancy.
Read our new (PDF) brochure you can print and share. Find out how to optimize your medications and learn how to use them to manage HG most effectively.
First World Colloquium on Hyperemesis Gravidarum
Bergen, Norway 20. – 21. October 2015
Show your support and let your healthcare providers know about this upcoming conference. It is primarily intended for health professionals but anyone is welcome. Dr. Fejzo who heads our research will be one of the speakers. The HER Foundation is the voice for HG mothers!
The HER Foundation has struggled mightily with the decision to take a year off from the HER5K. For 2015, we want to take the time to simply focus on the mission and vision of the Foundation and we need to raise more funds in order to make the race happen!
The HER Foundation relies 100% on donations, as it receives no private or government funding. This year we plan to focus more on educating the medical community by attending medical conferences that include nurses, midwives, nutritionists, and OBGYNs who need to hear our plea of better healthcare for HG women. This is one of the most important reasons the HER Foundation exists . . . to make sure your stories and your voices are heard by us speaking up for you. The medical community must understand that better healthcare is crucial for HG women.
As we look forward to sponsoring the race again in 2016, we want the many of you who have attended and supported the event in the past to know that 100% of whatever you choose to contribute will directly support our charitable endeavors. We hope you will join us next year and want to once again thank you for your continued support, dedication and friendship over the years!
That said, don’t forget that MAY 15TH is the annual HG Awareness Day. We are in the process of putting together “HG Meet up Groups” around the globe. On the weekend of May 15th, women can find a nearby group to meet and discuss all things HG or just simply enjoy each others company while hopefully having a fantastic meal, which we all miss so much during our HG pregnancies. We hope you will share your photos on our Facebook page and appreciate all the fundraising you do as well.
WE HOPE TO SEE YOU IN DC FOR THE 2016 HER5K!