HER Foundation helps UCLA, USC and 23&Me link debilitating pregnancy illness to two genes
FINALLY A BREAKTHROUGH FOR women suffering from the severe pregnancy illness, hyperemesis gravidarum (HG). Many people remember Princess Kate Middleton being hospitalized during her first pregnancy due to the severity of the disorder. However, other women affected by the pregnancy illness have limited family size, quit their jobs or sadly felt so desperate due to the debilitating illness that they terminated wanted pregnancies. Many HG women describe the illness as something no one can truly understand unless they have endured it themselves. Instead of the joy every pregnancy should bring, HG women spend most of the 9 months suffering in silence unable to eat or simply keep water down.
The HER Foundation, researchers at UCLA and USC, and 23andMe, Inc. conducted the first genome-wide analysis of Hyperemesis Gravidarum (HG) and identified two genes associated with HG, which was published this week in Nature Communications. (https://www.nature.com/articles/s41467-018-03258-0). Continue reading
Hope you had a wonderful time with family this Christmas! Best wishes for 2018 from all of us at HER! Thank you to all who donated to #Give2HER to make this year a success!
What an exciting month for HG Awareness! From reaching and teaching docs at ACOG, the premiere OB conference, to HG Awareness Day on May 15, and the HER 5K Purple Bucket Run/Walk (with a 1 mile walk/run) on May 20th! The Purple Bucket Run is as much fun and awareness as it is fundraising for important genetics research to find a cause and cure for HG. Grant funding is rare for HG despite the devastating impact on families and the 1000’s of babies lost each year! Help us raise awareness and funding so more women and their children survive HG!
As we say goodbye to an amazing year, we welcome 2017 and eagerly await the exciting events ahead. From a 5k to medical conferences and new research, HER will achieve even more this year. We have impacted the lives of over 17,000 women this past year, and thanks to your donations, are able to be your voice at the largest OB conference, ACOG, in May 2017. See our end of the year report:
With your help, we will make 2017 the #BestYearEver!
A study published by UCLA and supported, in part, by the Hyperemesis Education and Research Foundation found no evidence linking Zofran to birth defects.
“What was really significant to me was that women with extreme morning sickness who took Zofran reported fewer miscarriages and terminations and experienced higher live birth rates,” Fejzo said. “Taking this medication helped them get through their pregnancies and gave them their desired outcome, a live birth.”
Marlena Fejzo, PhD
Source: UCLA Health
Read the full study or HER Foundation collaborative research. Continue reading
HER is hosting #PTSDchat tonight at 6 pm PT (9 pm ET). Join us in a conversation about PTSD after HG via this special Twitter chat using the hashtag #PTSDchat.
Survivors of hyperemesis gravidarum may have problems with self-esteem, intimacy, guilt, and conditioned food aversions. Pregnant women may experience anxiety and depression related to helplessness from receiving inadequate treatment for hyperemesis, fear of the hyperemesis recurring in future pregnancies, painful and invasive treatments, and having to face the fear of serious harm or death to herself and/or her unborn child.
Click more information on this event.
Click here to go straight to the live hashtag during the chat (or at another time to read).
We are excited to begin 2016 with so much enthusiasm about the genetic research finding. Thanks to our volunteers, we also served 1000’s of mothers last year! With your support, we anticipate this year will be even more successful!
Representatives from 12 nations convened in Bergen, Norway last week to present the latest research on HG at the First World Colloquium on Hyperemesis Gravidarum. HG researchers, obstetricians, psychologists, leaders of support groups, and HG patients were present. The Chair of the Conference, Jone Trovik, plans to create an International Society for HG Research. Creating guidelines for core outcomes and priorities for future clinical trials were discussed. The group plans to reconvene in 2 years.
An important part of the HER Foundation’s mission is empowering families with facts, resources, and tools to advocate for needed care during pregnancy. Therefore, our website is rich with information for HG Moms and families. Here are some of the most popular pages:
Survival Guide and Downloads
Read our Survival Guides with tips and strategies for coping with HG. Also find downloadable tools to document and journal symptoms.
Medications, typical dosages, side-effects, and related research can be viewed on this page.
Health Professional Referral Network
Find or add a health professional at this link. The Referral Network is updated on an ongoing basis as moms submit health professionals worldwide.
Connecting with the volunteers from the HER Foundation is easy. In addition to the Support Forums, HER also has two Facebook groups: HG Support & HG Kids.
Pregnancy After HG
Find the info to make a medical protocol prior to conception as well as physically and mentally prepare for another HG pregnancy.