This year, we are celebrating HG Awareness all month long because the HER/UCLA/USC team has identified the first cause of HG! That is truly groundbreaking and only happened due to your donations and participation! Let’s spread the message far and wide that no longer can others erroneously claim HG is a psychological disorder! See all the activities on our FB Events page. Here is a summary:
What is the HG breakthrough we co-published in Nature Communications?
This study provides scientific evidence linking 2 genes, GDF15 and IGFBP7, to HG. These genes provide the instructions to build the proteins GDF15 and IGFBP7 in the human placenta during pregnancy. The proteins are known to be important in the development of the placenta and in controlling appetite. We have done additional work presented at the ICHG (vimeo.com/260389622) showing that not only are these genes linked to HG, but also, the proteins are abnormally high in the blood from patients hospitalized with HG.
Do you believe in our goal of improving HG management so moms & babies have a healthy future? DATA leads to PROGRESS!! So we need YOU – try our free iPhone app TODAY! Why is this app SO CRITICAL?? Imagine this… [See instructional demo!]
- Imagine slow research studies replaced by real-time data from the app being used to develop effective treatment protocols!!
- Imagine being able to easily communicate to your health professionals exactly what medications you took and how sick you truly are!
- Imagine seeing how much (or little) you’ve eaten and if your treatments are working after just 5 minutes each day using the app.
- Imagine getting alerts when your weight drops or you are getting dehydrated and need to go to the ER before your condition is serious!
- Imagine being reminded to take your meds and change your IV dressing if needed.
Imagine no more! This app will do all that and more! If we get enough participation and feedback, we can finalize this HG Care App project and moms enduring HG will finally have hope for real progress very soon! Progress means OUR CHILDREN won’t suffer as we have!
This app will NOT be completed without YOUR participation! This is a ONCE in a lifetime opportunity for the HG community thanks to #HERFoundation and #UCLA! Please join today!If you are not pregnant or using an iPhone, share this post and educate others on the CRITICAL need for this app. It’s NOW OR NEVER!!
The International Colloquium on HG in London (Oct 5-6) was a great success! Two presentations (1, 2) explained how ketones should not be required to be diagnosed with HG or given treatment. Some women are denied IV fluids if they do not have ketones.
What are ketones? They are produced when the body is starving and uses fat versus carbohydrates as fuel.
Ketones do not always correlate with weight loss or symptoms severity. They do predict a longer duration of hospitalization.
The HER Foundation is bringing the voices of HG women to a research conference at the University of Pittsburgh in early October. The Biology and Control of Nausea and Vomiting 2013 is targeted to both basic researchers and clinical investigators working in the field of nausea and vomiting. The conference will be useful for clinicians needing up-to-date information about treatments for nausea and vomiting, such as in patients suffering from hyperemesis gravidarum (HG).
One of the reasons the HER Foundation was created was to fund much needed research on HG. With the help of UCLA’s David Geffen School of Medicine we have funded over $46,000 in research grants. Thanks to all of the HG moms who have participated in our research! Because of you, UCLA has been able to identify medications (antihistamines) and other factors (gestational hypertension, early symptoms) linked to preterm birth and low birthweight babies in hyperemesis pregnancies. See Table 5 for the list of over 35 medications/treatments used compared to pregnancy outcomes and effectiveness. Share this research with your medical providers so you can make informed decisions together on how to treat your HG.
The HER (Hyperemesis Education & Research) Foundation proudly presented a check for more than $46 thousand to Dr. Marlena Fejzo, geneticist, of the David Geffen School of Medicine at UCLA on Friday, September 14th. The donation will fund continued groundbreaking research on a relatively unknown, debilitating pregnancy condition called Hyperemesis Gravidarum, or HG.
Mel will receive a $200 gift card from Amazon thanks to her recruiting skills! Way to go Mel, thanks to your efforts and that of your friends the HER Foundation and USC/UCLA are closer to reaching thier research goal! We are looking for both HG and non-HG mom’s to be a part of the study, so please email firstname.lastname@example.org to join, it truly is the most important thing you can do to make a difference for HG moms in the future!
Time is of the essence as the budget crisis is likely to lead to cuts in NIH funding next year which will include our HG study if we don’t enroll and collect all our saliva samples before the cuts are in effect. Please participate (contact email@example.com) and please follow through with the HG study now.
An extreme form of pregnancy-related nausea and vomiting known as hyperemesis gravidarum (HG) takes a heavy toll on thousands of women each year and can lead to hospitalization and pregnancy termination. But this new research suggests pregnant women are not the only victims.