HG Awareness Day: How it Began

The International HG Awareness Movement began in 2012 when the HER Foundation held the first HG Awareness Day on May 15th.

On May 17, 2012, the Governor of North Dakota, Dennis Daugaard, issued an Official Executive Proclamation for the HER Foundation naming May 15th to be HG Awareness Day! “We want to thank Governor Daugaard for being the first Governor to recognize HG Awareness Day, and we are encouraged by his recognition of the need for awareness for HG women in his state. We hope it will inspire state lawmakers to follow in his footsteps for future Awareness Days. This is a huge step in raising awareness, education, and research. We are truly grateful,” said Ann Marie King, Co-Founder of the HER Foundation.

Since the first HGAD with the theme of “Pregnant and Starving for Answers,” the international movement has grown to include organizations and people from around the world. The HER Foundation is proud to be the global leader in awareness, research, education, advocacy, and support for the HG community.

HER has achieved many firsts including over two dozen ground-breaking research studies including those identifying the first genes associated with HG, developing HG assessment tools and protocols, and creating the first HG Care app to improve tracking and reporting of symptoms and treatment. HER continues to be the voice of hope and help for HG.

Support the work of HER to ensure continued progress for the next generation!

The HG CARE APP is available!!!

After three years of hard work by HER Foundation and UCLA Health, we celebrate the official public release of the first HG Care iOS app! Now women can track their symptoms and treatments to find out what’s working. Plus they can easily share insights into their progress with family and health professionals. The app is free. Remember if it makes you ill to use your phone, just have family input your data.

DOWNLOAD the app: https://itunes.apple.com/us/app/hg-care/id1148105670?mt=8

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15 Years of Progress!

We’re starting the next chapter at HER as we kick off our 15th Anniversary!! From scientists to business experts, health professionals and digital health specialists, HER has assembled a team vast expertise! We launched our formal Board of Directors with an awesome meeting that discussed many ways to support families during/after HG, improve treatment by educating health professionals and launching the next version of the app, changing treatment protocols and public policy, and reaching more of the international community. Watch for many new opportunities to be part the next decade of HG progress!

Exciting News: Press Release

HER Foundation helps UCLA, USC and 23&Me link debilitating pregnancy illness to two genes

           FINALLY A BREAKTHROUGH FOR women suffering from the severe pregnancy illness, hyperemesis gravidarum (HG). Many people remember Princess Kate Middleton being hospitalized during her first pregnancy due to the severity of the disorder. However, other women affected by the pregnancy illness have limited family size, quit their jobs or sadly felt so desperate due to the debilitating illness that they terminated wanted pregnancies. Many HG women describe the illness as something no one can truly understand unless they have endured it themselves. Instead of the joy every pregnancy should bring, HG women spend most of the 9 months suffering in silence unable to eat or simply keep water down.

The HER Foundation, researchers at UCLA and USC, and 23andMe, Inc. conducted the first genome-wide analysis of Hyperemesis Gravidarum (HG) and identified two genes associated with HG, which was published this week in Nature Communications. (https://www.nature.com/articles/s41467-018-03258-0). Continue reading

UCLA study finds no evidence linking anti-nausea drug to birth defects

A study published by UCLA and supported, in part, by the Hyperemesis Education and Research Foundation found no evidence linking Zofran to birth defects.

“What was really significant to me was that women with extreme morning sickness who took Zofran reported fewer miscarriages and terminations and experienced higher live birth rates,” Fejzo said. “Taking this medication helped them get through their pregnancies and gave them their desired outcome, a live birth.”
Marlena Fejzo, PhD

Source: UCLA Health
Read the full study or HER Foundation collaborative research. Continue reading