HG Awareness Day: How it Began

The International HG Awareness Movement began in 2012 when the HER Foundation held the first HG Awareness Day on May 15th.

On May 17, 2012, the Governor of North Dakota, Dennis Daugaard, issued an Official Executive Proclamation for the HER Foundation naming May 15th to be HG Awareness Day! “We want to thank Governor Daugaard for being the first Governor to recognize HG Awareness Day, and we are encouraged by his recognition of the need for awareness for HG women in his state. We hope it will inspire state lawmakers to follow in his footsteps for future Awareness Days. This is a huge step in raising awareness, education, and research. We are truly grateful,” said Ann Marie King, Co-Founder of the HER Foundation.

Since the first HGAD with the theme of “Pregnant and Starving for Answers,” the international movement has grown to include organizations and people from around the world. The HER Foundation is proud to be the global leader in awareness, research, education, advocacy, and support for the HG community.

HER has achieved many firsts including over two dozen ground-breaking research studies including those identifying the first genes associated with HG, developing HG assessment tools and protocols, and creating the first HG Care app to improve tracking and reporting of symptoms and treatment. HER continues to be the voice of hope and help for HG.

Support the work of HER to ensure continued progress for the next generation!

HER Foundation Online HG Support Group

As a service to moms with a current or prior diagnosis of HG, the HER Foundation will host free, monthly online support groups via GoToMeeting on the third Thursday of the month from 12:00 – 1:00 PM/CST. Currently, there is a limit of 150 participants. Follow the Facebook event for updates and reminders.

The purpose of this online support group is to help moms to connect with other survivors of this devastating pregnancy condition. Regardless of how long it’s been since your traumatic pregnancy with HG, we hope that by connecting we can continue to heal. These online groups will be facilitated by HER Foundation Board Members and HG survivors, Sarah Coffman and Elizabeth Lowder. Both Sarah and Elizabeth are mental health professionals that treat women with HG in St. Louis, MO.

GoToMeeting Invitation

Title of Meeting: “HG Support Group”

Please join my meeting from your computer, tablet or smartphone.

(For supported devices, tap a one-touch number below to join instantly.)

You can also dial in using your phone. 
United States: +1 (646) 749-3129 
Australia: +61 2 8355 1050 
Canada: +1 (647) 497-9391 
United Kingdom: +44 330 221 0088 

Access Code: 163-541-877 

New to GoToMeeting? Get the app now and be ready when your first meeting starts.

Learn more about GoToMeeting and how to join a meeting.

Come Home to HER for HG Awareness Day

Come Home to HER for HG Awareness Day 2019, and be a VOICE in the HG community, your local community, the media, or on social media! Help spread awareness about Hyperemesis Gravidarum! One voice. One story. YOUR story may be all it takes for someone to hear our message of education and advocacy, that HG is more than what you see!

  1. Meetup with another HG family.
  2. Donate to get more answers.
  3. Volunteer with the HER Foundation.
  4. Add our Facebook frames and join our Facebook event.
  5. Use the International HGAD logo.
  6. Wear a tougHGirls of HG tee.
  7. Be a VOICE…in the HG community, with the media, and on social media.
SHARE THE FACTS
  • HG, hyperemesis gravidarum, is a pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting.
  • HG is not the “morning sickness” of healthy, normal pregnancies. It is a distinct diagnosis marked by severe and relentless symptoms that pose significant risks to the health of both mom and baby. Over 1/3rd of HG babies do not make it to term.
  • HG babies are at increased risk for low birth weight, small size for gestational age, and preterm birth. In utero exposure to HG is linked to a 3.6-fold increased risk of emotional/behavioral & developmental disorders.Nearly 20% of HG pregnancies are lost to therapeutic terminations, citing “no hope for relief.” Current treatments are not adequate to prevent termination of these planned, wanted pregnancies.
  • Mothers with HG’s most severe forms can experience pneumothorax, organ rupture, retinal detachment and blindness, eardrum and jaw damage, rib fractures, esophageal tears, the neurological syndrome Wernicke’s encephalopathy, or even death.
  • 18% of women report full criteria of post-traumatic stress syndrome (PTSS) following an HG pregnancy. More than half of mothers have post-traumatic stress symptoms.
  • In 2009, inpatient treatment for HG in the U.S. cost more than $250,000,000. HG is the leading cause of hospitalization in early pregnancy, and is second only to preterm labor as the most common overall cause of hospitalization during pregnancy.

GET INVOLVED

 

 

 

We’re hosting #PTSDchat on Twitter tonight, March 30th

HER is hosting #PTSDchat tonight at 6 pm PT (9 pm ET). Join us in a conversation about PTSD after HG via this special Twitter chat using the hashtag #PTSDchat.

Survivors of hyperemesis gravidarum may have problems with self-esteem, intimacy, guilt, and conditioned food aversions. Pregnant women may experience anxiety and depression related to helplessness from receiving inadequate treatment for hyperemesis, fear of the hyperemesis recurring in future pregnancies, painful and invasive treatments, and having to face the fear of serious harm or death to herself and/or her unborn child.

Click more information on this event.

Click here to go straight to the live hashtag during the chat (or at another time to read). 

ptsd mom

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I had a niggle – #HERstory Guest Blog by Emma Paget

I had a niggle*. A niggle that remained after all plausible causes for my bouts of sickness and fatigue were eliminated and two whizzy sticks later the niggle was confirmed. There was a bundle of joy! I was brought to my knees – in the bathroom. Repeatedly!

“Morning sickness is part of the pregnancy!”

“It won’t last. Once you hit 3 months, it’ll go”

So I persevered. I met my midwife. I didn’t think to tell her that I was sick all the time. Brushing my teeth made me spew. My flatmate’s perfume made me spew. The smell of coffee, jerky braking on transport, moving from my bed to upright. Morning noon and night. It was relentless, exhausting, and I felt pathetic.

I thought “I’m failing at motherhood already.” Eight weeks in, and I was falling apart. Unable to get a handle on basic day to day things, perform at my job – let alone nourish my newly growing Bundle. But this is normal right? Just the untold aspect of morning sickness surely? I needed to pull myself together.

HERstory_BlogContest final emma

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