Do you believe in our goal of improving HG management so moms & babies have a healthy future? DATA leads to PROGRESS!! So we need YOU – try our free iPhone app TODAY! Why is this app SO CRITICAL?? Imagine this… [See instructional demo!]
- Imagine slow research studies replaced by real-time data from the app being used to develop effective treatment protocols!!
- Imagine being able to easily communicate to your health professionals exactly what medications you took and how sick you truly are!
- Imagine seeing how much (or little) you’ve eaten and if your treatments are working after just 5 minutes each day using the app.
- Imagine getting alerts when your weight drops or you are getting dehydrated and need to go to the ER before your condition is serious!
- Imagine being reminded to take your meds and change your IV dressing if needed.
Imagine no more! This app will do all that and more! If we get enough participation and feedback, we can finalize this HG Care App project and moms enduring HG will finally have hope for real progress very soon! Progress means OUR CHILDREN won’t suffer as we have!
This app will NOT be completed without YOUR participation! This is a ONCE in a lifetime opportunity for the HG community thanks to #HERFoundation and #UCLA! Please join today!If you are not pregnant or using an iPhone, share this post and educate others on the CRITICAL need for this app. It’s NOW OR NEVER!!
The International Colloquium on HG in London (Oct 5-6) was a great success! Two presentations (1, 2) explained how ketones should not be required to be diagnosed with HG or given treatment. Some women are denied IV fluids if they do not have ketones.
What are ketones? They are produced when the body is starving and uses fat versus carbohydrates as fuel.
Ketones do not always correlate with weight loss or symptoms severity. They do predict a longer duration of hospitalization.
In response to the announcement of Catherine, Duchess of Cambridge’s third pregnancy and treatment for hyperemesis gravidarum (HG), the Hyperemesis Education and Research (HER) Foundation extends best wishes for the health of mother and baby during this joyful yet challenging time.
Distinct from “morning sickness” common in most healthy pregnancies, HG is characterized by weight loss, malnutrition, and dehydration due to severe vomiting and/or nausea. Severity and duration of symptoms vary, but HG remains the leading cause of hospitalization in early pregnancy and a debilitating medical condition that can have serious health consequences for both mom and baby. It is particularly threatening to mothers without immediate access to effective treatment and IV nutritional support.
“While the Duchess of Cambridge is undoubtedly receiving the proactive and knowledgeable care that has an enormous positive impact on her and the baby’s health, our hearts go out to her as she again experiences the disruption of health, work, and family life that many thousands of HG women endure each year.” said Kimber Wakefield MacGibbon, R.N., HER Foundation co-founder and director. “It is our hope that through increased funding for HG research, in addition to education, we can restore some of the pregnancy joy for mothers with HG, so they and their babies have a healthier future.”
The Duchess’s third pregnancy comes at a time of great promise and hope for HG women and families: Continue reading
UCLA Health is partnering with HER on the first HG app. It will release around September 1 for user testing and we need your help! It will only take about 5 minutes to input your symptoms and food/fluids each day. You must be pregnant, sick with nausea/vomiting, using an iPhone and apps, and speak English. See the full details below. If you don’t qualify, or are not currently pregnant, you can help by sharing this with your friends and on social media. If you are interested in trying out our new HG Care app, please contact Dr. Marlena Fejzo immediately at mfejzo @ mednet.ucla.edu.
What an exciting month for HG Awareness! From reaching and teaching docs at ACOG, the premiere OB conference, to HG Awareness Day on May 15, and the HER 5K Purple Bucket Run/Walk (with a 1 mile walk/run) on May 20th! The Purple Bucket Run is as much fun and awareness as it is fundraising for important genetics research to find a cause and cure for HG. Grant funding is rare for HG despite the devastating impact on families and the 1000’s of babies lost each year! Help us raise awareness and funding so more women and their children survive HG!
Our HG researchers and experts are attending the premier OB conference, ACOG, May 7-8 to take your messages about HG! OBs will receive a reusable lunch bag that reminds them that nourishing moms means a healthier future. We will also demo the HG Care app being developed with UCLA mHealth. Enter your message in the donation note box to join this exciting event! You can also fundraise to help us make the most of this exhibit.
Join us at the beautiful Diversey Harbor on Saturday, May 20, 2017 for the Purple Bucket Run/walk, which includes a timed 5K run/walk & a 1 mile fun run with awards and a pizza party afterward! (Registration for pizza separate from race.) You can also run virtually/locally. All race proceeds benefit HER Foundation awareness and research. Show your appreciation for our sponsors and fundraise to make this the #BestRaceEver!
As we say goodbye to an amazing year, we welcome 2017 and eagerly await the exciting events ahead. From a 5k to medical conferences and new research, HER will achieve even more this year. We have impacted the lives of over 17,000 women this past year, and thanks to your donations, are able to be your voice at the largest OB conference, ACOG, in May 2017. See our end of the year report:
With your help, we will make 2017 the #BestYearEver!
HER joined CrowdRise, the largest crowdfunding platform for charitable giving, to participate in the @CrowdRise Giving Tower, its #GivingTuesday campaign. Show your support by fundraising for HER to help us exhibit at the largest OB medical conference in May 2017 to be YOUR voice. Post your #unselfie on November 29th, #GivingTuesday with the message that you support HER! The most creative #unselfie will receive a prize. For a printable “I support HER” sign (see below).
They say when you see those two little lines on your home pregnancy test, your life is forever changed. As I wrestled my 9 month old into his pj’s I can say this is very true. However, sometimes life changes in ways we couldn’t imagine. When you see those two lines you start picturing the future filled with happy moments, you don’t imagine sadness and loss.
You probably heard the statistics, 1 in 3 HG pregnancies ends in a loss, but from personal experience, I can say that means little until you join the 1 in 3.
I had been tracking my cycles for a while when my husband and I started trying to conceive. After 14 days of high temps and a gut feeling, I awoke early one morning and took a test. As the two lines appeared, all my cute Pinterested ideas for sharing the news with your spouse disappeared, as I ran through the house screaming, “Look, look, there are TWO lines!!!!!”. It was a joyous moment, one to remember forever.