After three years of hard work by HER Foundation and UCLA Health, we celebrate the official public release of the first HG Care iOS app! Now women can track their symptoms and treatments to find out what’s working. Plus they can easily share insights into their progress with family and health professionals. The app is free. Remember if it makes you ill to use your phone, just have family input your data.
DOWNLOAD the app: https://itunes.apple.com/us/app/hg-care/id1148105670?mt=8
We’re starting the next chapter at HER as we kick off our 15th Anniversary!! From scientists to business experts, health professionals and digital health specialists, HER has assembled a team vast expertise! We launched our formal Board of Directors with an awesome meeting that discussed many ways to support families during/after HG, improve treatment by educating health professionals and launching the next version of the app, changing treatment protocols and public policy, and reaching more of the international community. Watch for many new opportunities to be part the next decade of HG progress!
This year, we are celebrating HG Awareness all month long because the HER/UCLA/USC team has identified the first cause of HG! That is truly groundbreaking and only happened due to your donations and participation! Let’s spread the message far and wide that no longer can others erroneously claim HG is a psychological disorder! See all the activities on our FB Events page. Here is a summary:
- Thunderclap – shout the message simultaneously!
- Facebook Live on May 15
- Meetup with another HG family
- Donate to get more answers
- Use our Facebook frames
- Share our posts on social media
What is the HG breakthrough we co-published in Nature Communications?
This study provides scientific evidence linking 2 genes, GDF15 and IGFBP7, to HG. These genes provide the instructions to build the proteins GDF15 and IGFBP7 in the human placenta during pregnancy. The proteins are known to be important in the development of the placenta and in controlling appetite. We have done additional work presented at the ICHG (vimeo.com/260389622) showing that not only are these genes linked to HG, but also, the proteins are abnormally high in the blood from patients hospitalized with HG.
HER Foundation helps UCLA, USC and 23&Me link debilitating pregnancy illness to two genes
FINALLY A BREAKTHROUGH FOR women suffering from the severe pregnancy illness, hyperemesis gravidarum (HG). Many people remember Princess Kate Middleton being hospitalized during her first pregnancy due to the severity of the disorder. However, other women affected by the pregnancy illness have limited family size, quit their jobs or sadly felt so desperate due to the debilitating illness that they terminated wanted pregnancies. Many HG women describe the illness as something no one can truly understand unless they have endured it themselves. Instead of the joy every pregnancy should bring, HG women spend most of the 9 months suffering in silence unable to eat or simply keep water down.
The HER Foundation, researchers at UCLA and USC, and 23andMe, Inc. conducted the first genome-wide analysis of Hyperemesis Gravidarum (HG) and identified two genes associated with HG, which was published this week in Nature Communications. (https://www.nature.com/articles/s41467-018-03258-0). Continue reading
Hope you had a wonderful time with family this Christmas! Best wishes for 2018 from all of us at HER! Thank you to all who donated to #Give2HER to make this year a success!
Do you believe in our goal of improving HG management so moms & babies have a healthy future? DATA leads to PROGRESS!! So we need YOU – try our free iPhone app TODAY! Why is this app SO CRITICAL?? Imagine this… [See instructional demo!]
- Imagine slow research studies replaced by real-time data from the app being used to develop effective treatment protocols!!
- Imagine being able to easily communicate to your health professionals exactly what medications you took and how sick you truly are!
- Imagine seeing how much (or little) you’ve eaten and if your treatments are working after just 5 minutes each day using the app.
- Imagine getting alerts when your weight drops or you are getting dehydrated and need to go to the ER before your condition is serious!
- Imagine being reminded to take your meds and change your IV dressing if needed.
Imagine no more! This app will do all that and more! If we get enough participation and feedback, we can finalize this HG Care App project and moms enduring HG will finally have hope for real progress very soon! Progress means OUR CHILDREN won’t suffer as we have!
This app will NOT be completed without YOUR participation! This is a ONCE in a lifetime opportunity for the HG community thanks to #HERFoundation and #UCLA! Please join today!If you are not pregnant or using an iPhone, share this post and educate others on the CRITICAL need for this app. It’s NOW OR NEVER!!
The International Colloquium on HG in London (Oct 5-6) was a great success! Two presentations (1, 2) explained how ketones should not be required to be diagnosed with HG or given treatment. Some women are denied IV fluids if they do not have ketones.
What are ketones? They are produced when the body is starving and uses fat versus carbohydrates as fuel.
Ketones do not always correlate with weight loss or symptoms severity. They do predict a longer duration of hospitalization.