Celebrating 16 Years of Help and Hope for HG

Everyone has a birthday, and October 1st is ours! We are celebrating 16 years as a 501(c)3 nonprofit! But what’s a birthday without gifts? We begin the celebration unwrapping gifts from our community…to our community. 

HG Courses

Our amazing partners in Copenhagen, CanopyLAB, have been working with us since June to prepare FREE online HG courses for you and your family. This is a dream come true for many of us: HG courses available for all. HER’s knowledge and CanopyLAB’s talent and platform come together to bring you four courses!!

Introduction to HG: Hyperemesis Gravidarum

HG: a survival guide for expecting moms

HG: tips, support, and resources

The ABC of HG for friends and family

Special birthday cheers and lots of love to #HGsister, Sahra-Josephine, CEO, and Yamanda, eLearning Designer, for making this happen. We are grateful!

16% and Giveaway


OCTOBER 1st ONLY, Your Little Dove is donating 16% of all sales to the HER Foundation! When we say, 16% of sales, we mean 16% of ALL sales. We are so thankful for this generous gift from #HGsister, Cindy, and how it will help to continue progress in education, research, and support. So go shopping for the holidays! Learn about how Cindy started this online heirloom toy company after the loss of her second little one.

In addition, Cindy is sponsoring a giveaway for YOU! Between October 1st and October 22nd, the three largest donors to the HER Foundation will receive store credits from Your Little Dove and be able to choose from the beautiful selection of items: these three lucky people will receive a gift of either $100, $50, or $25. Thank you Cindy!

Celebration Sundays

Courses, 16% donations, and a giveaway are only the part of the celebration. Each Sunday in October will be something special for you!

  • HER’s HG experts are launching a new HG management tool, 10/6. HER HG Algorithm
  • Hyperemesis Sisterhood is hosting a Q&A with HER on Instagram, 10/13.
  • The three donors with the highest recurring, new donations will receive a tougHGirl t-shirt (minimum $25/month), 10/20.
  • We will announce the winners of the Your Little Dove giveaway, 10/27.
  • And ALL month, members of our community will tell their stories and many more will be featured in HER social media graphics.
  • Show us your selfies: #WeAreHER! Print the linked flier or hand write your own signs! Be sure to tag the HER Foundation when you share: I am HER! You are HER! We are HER! Together WE are the HER Foundation.
Thank you: Together, we are making HG Progress

We are thankful for our generous partners adding a lot of excitement and kindness to our 16th celebration. But we cannot do what we do without our wonderful community: YOU! Please help us reach our fundraising goal of $16,000 for HG Progress. We are excited to celebrate with you.

 I am HER!

You are HER!

We are HER!

Together, we are an unstoppable
force for healthy moms and babies. 

Participate in HG Progress: Research Opportunities

Would you like to participate in HG Progress? We have research opportunities for currently pregnant moms with and without HG. Please participate.
HELP Score Validation

We are doing an important survey to validate the HELP Score (HyperEmesis Level Prediction Score) which tells us how severe HG is today.

We need women to fill out this survey; before and after they have a change in treatment. Start by filling it out the day before you get medical care like IV fluids or new medication; then fill it out again about 12-24 hours later. If you’re in the hospital, please try to fill it out once each day. The first survey is a little longer than the follow-up 24 hours later because we have to collect your pregnancy history and other standard research information, so feel free to start anytime. Most importantly, we need to see how your score changes with treatment. Please invite also women without HG to be our control group. Thanks!!

Nutrition Assessment Study
We know that women with HG often suffer more because of vitamin deficiencies. This nutrition assessment study will help us prove that. If you are pregnant, please fill out the research survey online. You can do it on your phone or your friend/family member can ask you the questions and fill it out for you. Please fill it out on more than one day, especially after you receive IV nutrition or vitamins. It will take about 10 minutes. You can save it part way if needed and finish later.

Note: A family member can enter your data for you.

If you have feedback, email Kimber@HelpHER.org. 

Thank you for your time and for being part of HG progress!

HER Foundation Joins MoMMA’s Voices

The HER Foundation is pleased to announce it has joined MoMMA’s Voices, a national coalition of patient organizations and individuals with lived experiences or those who represent them, using their voices to reduce maternal complications in pregnancy and the postpartum period.

With the wave of media and public attention on the growing and unacceptable rates of maternal mortality and severe morbidity in the United States, this coalition answers the need for a strong consumer voice to advocate, amplify, and illustrate these issues in the US. MoMMA is short for Maternal Mortality and Morbidity Advocates, which captures the coalition’s mission.

For survivors and family members of the HER Foundation, we encourage you to visit www.mommasvoices.org/individual to share your story, join the training, and use your voice to be a champion for change. If you have already shared your story on our site or with another source, you can simply copy your link into the story section after completing the demographic section of the submission.

HER joins the coalition that includes other organizational members Amniotic Fluid Embolism (AFE) Foundation, Black Women’s Health Imperative, Every Mother Counts, National Accreta Foundation, Preeclampsia Foundation, 2020Mom, The Shades of Blue Project, Sepsis Alliance and others still to be confirmed.

The coalition’s overarching goal is to provide a home and platform for the patient voice to actively engage in efforts to make childbirth safer in our nation. Issues like patient-provider communications, racial disparities, quality of healthcare delivery, and patient information cut across all medical conditions and heavily contribute to preventable maternal deaths and illness. Most importantly, it will provide training and tools to equip advocates to become effective champions for change.

HG Awareness Day: How it Began

The International HG Awareness Movement began in 2012 when the HER Foundation held the first HG Awareness Day on May 15th.

On May 17, 2012, the Governor of North Dakota, Dennis Daugaard, issued an Official Executive Proclamation for the HER Foundation naming May 15th to be HG Awareness Day! “We want to thank Governor Daugaard for being the first Governor to recognize HG Awareness Day, and we are encouraged by his recognition of the need for awareness for HG women in his state. We hope it will inspire state lawmakers to follow in his footsteps for future Awareness Days. This is a huge step in raising awareness, education, and research. We are truly grateful,” said Ann Marie King, Co-Founder of the HER Foundation.

Since the first HGAD with the theme of “Pregnant and Starving for Answers,” the international movement has grown to include organizations and people from around the world. The HER Foundation is proud to be the global leader in awareness, research, education, advocacy, and support for the HG community.

HER has achieved many firsts including over two dozen ground-breaking research studies including those identifying the first genes associated with HG, developing HG assessment tools and protocols, and creating the first HG Care app to improve tracking and reporting of symptoms and treatment. HER continues to be the voice of hope and help for HG.

Support the work of HER to ensure continued progress for the next generation!

HER Foundation Online HG Support Group

As a service to moms with a current or prior diagnosis of HG, the HER Foundation will host free, monthly online support groups via GoToMeeting on the third Thursday of the month from 12:00 – 1:00 PM/CST. Currently, there is a limit of 150 participants. Follow the Facebook event for updates and reminders.

The purpose of this online support group is to help moms to connect with other survivors of this devastating pregnancy condition. Regardless of how long it’s been since your traumatic pregnancy with HG, we hope that by connecting we can continue to heal. These online groups will be facilitated by HER Foundation Board Members and HG survivors, Sarah Coffman and Elizabeth Lowder. Both Sarah and Elizabeth are mental health professionals that treat women with HG in St. Louis, MO.

GoToMeeting Invitation

Title of Meeting: “HG Support Group”

Please join my meeting from your computer, tablet or smartphone.

(For supported devices, tap a one-touch number below to join instantly.)

You can also dial in using your phone. 
United States: +1 (646) 749-3129 
Australia: +61 2 8355 1050 
Canada: +1 (647) 497-9391 
United Kingdom: +44 330 221 0088 

Access Code: 163-541-877 

New to GoToMeeting? Get the app now and be ready when your first meeting starts.

Learn more about GoToMeeting and how to join a meeting.

Come Home to HER for HG Awareness Day

Come Home to HER for HG Awareness Day 2019, and be a VOICE in the HG community, your local community, the media, or on social media! Help spread awareness about Hyperemesis Gravidarum! One voice. One story. YOUR story may be all it takes for someone to hear our message of education and advocacy, that HG is more than what you see!

  1. Meetup with another HG family.
  2. Donate to get more answers.
  3. Volunteer with the HER Foundation.
  4. Add our Facebook frames and join our Facebook event.
  5. Use the International HGAD logo.
  6. Wear a tougHGirls of HG tee.
  7. Be a VOICE…in the HG community, with the media, and on social media.
SHARE THE FACTS
  • HG, hyperemesis gravidarum, is a pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting.
  • HG is not the “morning sickness” of healthy, normal pregnancies. It is a distinct diagnosis marked by severe and relentless symptoms that pose significant risks to the health of both mom and baby. Over 1/3rd of HG babies do not make it to term.
  • HG babies are at increased risk for low birth weight, small size for gestational age, and preterm birth. In utero exposure to HG is linked to a 3.6-fold increased risk of emotional/behavioral & developmental disorders.Nearly 20% of HG pregnancies are lost to therapeutic terminations, citing “no hope for relief.” Current treatments are not adequate to prevent termination of these planned, wanted pregnancies.
  • Mothers with HG’s most severe forms can experience pneumothorax, organ rupture, retinal detachment and blindness, eardrum and jaw damage, rib fractures, esophageal tears, the neurological syndrome Wernicke’s encephalopathy, or even death.
  • 18% of women report full criteria of post-traumatic stress syndrome (PTSS) following an HG pregnancy. More than half of mothers have post-traumatic stress symptoms.
  • In 2009, inpatient treatment for HG in the U.S. cost more than $250,000,000. HG is the leading cause of hospitalization in early pregnancy, and is second only to preterm labor as the most common overall cause of hospitalization during pregnancy.

GET INVOLVED

 

 

 

The HG CARE APP is available!!!

After three years of hard work by HER Foundation and UCLA Health, we celebrate the official public release of the first HG Care iOS app! Now women can track their symptoms and treatments to find out what’s working. Plus they can easily share insights into their progress with family and health professionals. The app is free. Remember if it makes you ill to use your phone, just have family input your data.

DOWNLOAD the app: https://itunes.apple.com/us/app/hg-care/id1148105670?mt=8

Continue reading

15 Years of Progress!

We’re starting the next chapter at HER as we kick off our 15th Anniversary!! From scientists to business experts, health professionals and digital health specialists, HER has assembled a team vast expertise! We launched our formal Board of Directors with an awesome meeting that discussed many ways to support families during/after HG, improve treatment by educating health professionals and launching the next version of the app, changing treatment protocols and public policy, and reaching more of the international community. Watch for many new opportunities to be part the next decade of HG progress!

International HG Awareness Day 2018

This year, we are celebrating HG Awareness all month long because the HER/UCLA/USC team has identified the first cause of HG! That is truly groundbreaking and only happened due to your donations and participation! Let’s spread the message far and wide that no longer can others erroneously claim HG is a psychological disorder! See all the activities on our FB Events page. Here is a summary:

  1. Thunderclap – shout the message simultaneously!
  2. Facebook Live on May 15
  3. Meetup with another HG family
  4. Donate to get more answers
  5. Use our Facebook frames
  6. Share our posts on social media
    Donate for_ResearchEducationAwareness

Genetics Study Q&A

What is the HG breakthrough we co-published in Nature Communications?

This study provides scientific evidence linking 2 genes, GDF15 and IGFBP7, to HG. These genes provide the instructions to build the proteins GDF15 and IGFBP7 in the human placenta during pregnancy. The proteins are known to be important in the development of the placenta and in controlling appetite. We have done additional work presented at the ICHG (vimeo.com/260389622) showing that not only are these genes linked to HG, but also, the proteins are abnormally high in the blood from patients hospitalized with HG.
GDF15 ucla 3-18 two genes crop Continue reading